Survivorship
Surviving a brain tumor is a milestone worth celebrating — but survivorship is not the end of the journey. For many survivors, life after treatment comes with new challenges: adjusting to changes in abilities, finding emotional balance, and redefining what “normal” looks like. Whether you’re months or years past diagnosis, it’s important to know that your experiences are valid and that resources are available to help you thrive.
Maintaining Your Identity
Treatment and recovery can change how you see yourself — physically, cognitively, and emotionally. While your diagnosis may be part of your story, it does not define you.
Stay connected to passions and hobbies: Whether through art, music, sports, or volunteering, regularly engage in activities that feel authentically you.
Connect with survivor communities: Sharing experiences with others who “get it” can reinforce your sense of self and belonging.
Set new personal goals: Recovery may require adjustments, but goal-setting keeps you focused on your strengths and progress.
Finding Emotional Outlets
Brain tumor survivorship can bring feelings of anxiety, sadness, anger, or fear of recurrence. Emotional health is just as important as physical recovery.
Counseling & therapy: Licensed counselors, support groups, or survivorship programs can provide safe spaces to talk.
Creative expression: Writing, painting, photography, or music can help process complex emotions.
Physical activity: Exercise can reduce stress and boost mood, even if it’s gentle stretching or short walks.
Mindfulness & relaxation: Meditation, guided breathing, or yoga can help calm racing thoughts.
Returning to Work
Going back to work can be exciting, but also overwhelming. Fatigue, cognitive changes, or physical limitations may require adjustments.
Communicate with your employer: Share your needs and request accommodations under the Americans with Disabilities Act (ADA) if applicable.
Consider a gradual return: Start part-time and increase hours as your energy improves.
Update your skills: Training programs and continuing education can help you ease back into professional life.
Know your rights: The Job Accommodation Network (JAN) and the U.S. Department of Labor offer guidance for workplace accommodations.
Managing Anxiety and Emotional Health
Anxiety, especially around follow-up scans (“scanxiety”), is common among survivors.
Prepare for appointments: Bring a support person, write down questions, and review relaxation techniques beforehand.
Build a coping toolkit: Identify activities, people, and practices that help you feel grounded.
Stay informed — but avoid overload: Reliable, balanced information can help you feel empowered, but constant research may increase stress.
Remember: Survivorship is not a one-size-fits-all journey. It’s okay to take time, seek help, and celebrate your progress. You are more than your diagnosis — and your life can continue to be full of meaning, connection, and joy.